Friday #GoHugo: An Update.

An update from Marianne:

Chemo is DONE. Ten rounds over eight months. A total of:

15 doses vincristine
4 doses doxorubicin
6 doses cytoxin
4 doses ifosfamide
4 doses carboplatin
5 doses etopicide

So...Hugo is done, right? Not quite.

Currently Hugo has no immune system after his final round of chemo. He will mostly recover over the next week but will have a weakened immune system for a few months.

Next up are a set of scans, scheduled for next week. These will determine whether he can officially be finished with treatment.

Hugo still gets IV nutrition through his central line at night. We have been weaning him from it and he's down to 8 hours a night (from a high of 20). We have to get him off the IV and stable before his central line can be removed. His remaining kidney was taxed by chemo, leaving Hugo with an electrolyte imbalance (Fanconi Syndrome), so weaning has to be monitored closely. He also still struggles with eating and drinking enough.

Once the central line is out, life will begin to get back to the new normal. Hugo will get his first real bath in months, for starters. We are anxiously looking forward to him being cleared to get up-to-date on his vaccines. He will continue to have regular scans.

So, chemo is finished and we are definitely in the home stretch, but he isn't quite "done". Not yet. #‎gohugo